The amputation journey: What to expect and how to navigate recovery

Boyes Turner’s specialist amputation solicitors act for individuals who are coming to or have recently experienced amputation. This might be as a result of an injury at work, a road traffic accident, or as a result of medical negligence.

Each person’s journey down to amputation and beyond is unique, and patients will progress through rehabilitation in different ways, at different paces, and have access to different rehabilitation support.

However, experience has shown us that the distinct steps in the process are very similar in all cases, and the challenges faced by patients at each stage are no less significant, no matter the cause of the injury and what has brought them to their amputation.

The below timeline provides a general idea of what to expect when facing an amputation as a result of a serious injury.

             

Before amputation surgery

There will need to be a physical health assessment and psychological and emotional preparation where possible.

In some cases, pre-operative preparation can involve a degree of physical training to ensure you are in the best possible physical shape to recover from surgery.

After amputation surgery

After amputation surgery, you will be taken to the ward to begin your recovery. A catheter may be inserted to avoid frequent trips to the toilet. Painkillers will be provided to manage post-surgery discomfort. If the pain relief isn't sufficient, you should inform the medical staff so they can consider adjusting the medication.

The medical team will keep an eye on your vital signs, including temperature, heart rate and blood pressure.

The surgical site will be carefully bandaged. The medical team will monitor the site for infection or other complications like bleeding or swelling. It’s important to keep the wound clean and follow the medical team’s instructions for care.

You might start with gentle exercises to prevent stiffness or blood clots. You may be helped to a wheelchair as you begin your recovery.

You may wish to obtain support to help with any emotions around body confidence.

Amputation hospital recovery

While in hospital, a physiotherapist will guide you through exercises to improve blood circulation and prevent blood clots. You may also be given a compression aid to help reduce swelling, which could also alleviate phantom pain or sensations.

Physical therapy will also help to strengthen the muscles in the remaining part of the limb and improve mobility. The exercises can be important to help with balance, flexibility, and strength, as well as preparing for prosthetic use.

If the amputation affects hands or upper limbs, occupational therapy may also be offered to help with new ways of performing daily tasks like eating, cooking, bathing and dressing.

Learning to care for the amputation site (stump) is really important to avoid infections or sores. You may be advised on gentle massage, looking after the skin, and bandaging.

Going home after an amputation

Before discharge, a specialist may conduct a home visit to assess accessibility. This may include evaluating entry and exit points to the house and determining if a ramp is necessary. The specialist will also assess the bathroom to see if grab rails or a shower stool are needed. Adjustments can make daily activities easier and safer.

After discharge, follow-up appointments will be arranged to discuss any adjustments at home and determine if further support is required. Physiotherapy should also continue.

Over time, the stump will shrink as the tissue heals. This is a normal part of the recovery process, and it may require adjustments to bandages as the swelling decreases.

The amputation stump will need care to avoid infection and help to heal. You'll be given instructions on how to clean and dress the wound.

Amputee rehabilitation

It may take some time before a prosthetic limb is fitted, so assistance may be provided for tasks like using a wheelchair, transfers and mobilising on stairs.

Additionally, there should be access to support and counselling during the rehabilitation process. Amputation can have a significant psychological impact. Feelings of grief, depression, anxiety, or anger may follow the loss of a limb. These emotions are a natural part of the process, but they are important to address.

Many people find comfort in support groups where they can talk to others who have gone through similar experiences. Having a strong network of people who understand your journey can help ease the adjustment process.

Prosthetics

Once the amputation site has healed, specialists will assess whether a prosthetic limb is suitable. Your prosthetist will then begin the fitting process for your prosthetic limb. This may take a few visits to ensure a proper fit and function.

If a referral is made for a prosthetic limb, patients will need to be involved with the preparations. One of the goals is to desensitise any residual tissue to ensure the prosthetic limb is as comfortable as possible.

Measurements will be taken for the prosthetic. It is important to share details about your life, hobbies, and employment with the specialist team, as these factors are crucial in determining an appropriate prosthetic.

This process can take time to ensure comfort, mobility, and functionality. You’ll be taught how to use the prosthetic for everyday activities. For lower limb amputees, this might be for walking or, running. For upper limb amputees, this might be focused on general control and fine motor movements.

Prosthetic limb fitting

Several prosthetic limbs may be needed as the shape and size of the stump can change.

Any discomfort or concerns about the prosthetic limb should be discussed with the prosthetist. Some trial and error may be involved to get the fit just right. The prosthetist can make adjustments to address issues and improve comfort.

At first, using a prosthetic limb might be challenging. Time may be needed to adjust to the feel and function of the prosthetic.

Over time, many patients can resume a number of the activities and hobbies they enjoyed before the amputation, as they become more accustomed to the prosthetic and progress through the rehabilitation program.

Long term amputation recovery

You’ll need check-ups to monitor your health, particularly regarding circulation and the condition of your amputation stump. It’s also important to maintain a healthy lifestyle to support your overall well-being. Regular follow-up appointments with your medical team will help the recovery and can address complications like infection, pressure sores, or prosthetic issues.

Some people experience phantom limb pain where they feel pain or altered sensation or itching where the limb used to be. This can be distressing, but often improves over time.

Your goal may be to regain as much independence and mobility as possible. This could mean using a prosthesis, a wheelchair, or other aids.

Rehabilitation may also involve adapting your home or working environment to suit your needs.

Many amputees return to work, sports, and hobbies they once enjoyed with the help of adaptive aids or adjusted practices.

Conclusion

Recovering from amputation surgery is a gradual process that requires time, patience, and support. While it can be challenging, both physically and emotionally, the right rehabilitation, medical care, and psychological support can help you adjust to life after amputation. With appropriate help and a structured recovery plan, many individuals regain independence, adapt to life after surgery and overcome obstacles they may face.