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Written on 2nd February 2021 by

We are proud to support Cauda Equina Champions Charity in their first ever '1 Million Steps for CES' campaign. Every year more than 1,000 cases of cauda equina syndrome (CES) are recorded in spinal centres in the UK. Because of it's rarity we often see cases of Cauda Equina which have resulted from a delay in diagnosis or treatment. The people affected are then left with symptoms that might otherwise have been avoidable. The ongoing symptoms from CES can be life changing, affecting a person’s ability to live independently, their mobility and their ability to work.

Cauda Equina Champions Charity support those who have been diagnosed with Cauda Equina Syndrome and the people who help and care for those affected, and raise awareness about red flags symptoms to try to ensure a more timely diagnosis can be made.. Read their press release about the event below.

On January 29 2021, Cauda Equina Champions Charity are launching their first ever ‘1 Million Steps for CES’ campaign. 

The UK’s official Cauda Equina Syndrome (CES) charity are asking people to step into the New Year and help raise awareness of the condition by getting out there, walking for a better mental health and supporting those people that they may know or loved ones that have permanent disabilities resulting from the syndrome.

This month has seen the charity’s first clients take advantage of free guided meditation courses to help them manage pain and mental wellbeing. The money raised will help support more people in need of the services, which also includes a national helpline, support group meetings and much needed post-operative information. 

Cauda Equina Champions Charity have also delivered their first training to medical students from a range of disciplines including nurses, physios, post grad doctors and radiographers. 

Claire Thornber, Founder of the charity commented: “It has been extremely successfull and we will roll the training out over the coming year. It is important to get our message through to these newly qualified medics to improve outcomes for CES patients of the future.

“Through our work on the Helpline it has become apparent services accessible to patients with CES are being withdrawn, due to the impact of COVID therefore, it is more important than ever to offer any support we can in these difficult times and reach as many unsupported patients as possible.”

The launch of the campaign receives the continuing support and contribution of Sean Ash, a London emergency call handler, who recently has had emergency surgery. Despite experiencing a complete Cauda Equina Syndrome and becoming paralyzed, he is walking a mile to raise funds for London Ambulance Service. His last half mile will be completed on Friday and his final steps will be the first ones to launch the ‘1 Million Steps for CES’ fundraiser. 

‘1 Million Steps’ allows everyone to get involved and be part of the campaign, even those chronically affected by the condition. Every single step counts towards the collective goal of one million. 

To get involved and to start fundraising join the Just Giving campaign here: https://www.justgiving.com/campaign/1millionstepsforces and start clocking your steps for a better, less painful future on our Pacer group here (must do so on your phone): https://www.mypacer.com/organizations/aw82972/invite 

Find out more about the charity by visiting https://www.ihavecaudaequina.com/